Education for all

Our aim is to ensure all professionals working in children's palliative care are given access to the right training and education.

Our Centre of Excellence is the first step in this journey, supporting and funding vital research.

The following educational resources, provided by other likeminded organisations, may also be useful.

Heard is a charity that works to shift perceptions around misunderstood social issues. Since 2020, they’ve been working with people with lived experience, sector organisations, healthcare professionals, and the media to improve understanding of children’s palliative care.

By using evidence from communication science, they support the sector to reframe the conversation and break down barriers to access. Visit their website or get in touch with the Heard team to learn how they can support you.

Together for Short Lives, the UK’s children’s palliative care charity, has launched a free, first-of-its-kind training package to help health and care professionals have better conversations with families of terminally ill children.

‘Children’s palliative care: learning to communicate with families’ employs a broad range of content developed in collaboration with families, including scenario role play with professional actors.

Education for professionals

Education for parents

As well as supporting professionals, we also believe it's important to provide educational resources and support for parents and carers.

Despite a range of initiatives for parent carers in the UK, many parents tell us they still feel unprepared for caring for their child with a life limiting condition.

In order to identify key gaps in current education and training provision for parent carers, we will soon fund a short survey which will be developed in partnership with the PPI group. This survey will be distributed to parent-carers via a network of parent facing organisations.

The findings will allow us to fund the development of additional education and training resources for parent carers.